idk if anyone remembers me as my last post was 2 months ago but it’s in my profile history if you need context.
Long story short, I’ve now tried literally every blood thinner that exists. None of them solved the problem - actually, Xarelto, which is the one I started on, is also the one I tolerate best.
This likely means that my problems are not a side effect of the medication but caused by something else. And we don’t know what, so that’s cool.
I have more tests scheduled (in the 2 months since my last post I basically tried the last 2 blood thinners, that’s how long it takes lol) to look at other causes but my dr is pretty much at a loss and so am I. We’re just taking stabs in the dark trying to find something on tests.
The funny thing is I was talking to my neighbor today and they told me the husband’s sister-in-law has the same problem as me apparently, except no clot event prior to that. But she also can’t leave the house because it causes her to have nausea and vomit.
But it’s such a general symptom, where do you even begin with it? Looking things up online I saw a medical case of someone around my age who had a lesion in the cervicals (iirc) and developed a similar problem from it, vomiting up to 25 times a day. It’s the most generic symptom which makes it hard to pinpoint a cause.
So we’re kinda back to square one, but at least now I can get certificates if I need them because it’s not caused by the medication anymore so they can’t argue lol.
I invited some friends over on Friday to celebrate one year of the embolism, which is technically on May 13. I probably won’t be able to stay too long, but I think it’s important to still have some social contact in these situations. And it’s funny.
Thank you comrade. I’m not worried yet because it’s been going on for a year and while it has gotten worse it’s also stabilized and declining very slowly, but right now I’m also completely in the dark as much as my doctors if we will even find the problem lol. For now all I can do is be optimistic and just go to the exams as hard as it is to get there.